** AN INITIATIVE FOR RARE DISEASE AWARENESS & PREVENTION **
I M P S A Rare Disease Awareness & Prevention Initiative
EACH OF US CAN MAKE A DIFFERENCE TO ANOTHER LIFE.
BUT CHANGE HAS TO BEGIN WITHIN US FIRST!
ABOUT US
The Initiative
We are social impact enablers & catalysts who help foster partnerships between Corporates, compliant NGOs, Patient Advocacy Groups (PAGs), Healthcare & subject matter experts to support awareness & prevention of rare diseases.
IMPS is a non profit initiative, inspired by the journey of a young girl, Keya Hatkar, who was diagnosed with SMA at the age of 10 months and given only 2 years to live.
Today, Keya is 15 years old and in spite of living with 80% physical disability, Keya is the recipient of the prestigious Pradhan Mantri Rastriya Bal Puraskar 2024-25. She is a national & global award winning, young Author of 3 best sellers from, India. Keya is also one of the top 30 Global Disability Inclusion Advocate, TEDx Speaker, Artist, Coder, Podcaster & a YouTuber.
Keya believes "I M POSSIBLE!" and inspires many others to do so.
"I M POSSIBLE !"
When a child or an adult is diagnosed with a rare disease, their journey starts on an impossible and hopeless note.
Our mission is to first help the affected families transform this IMPOSSIBLE! mindset to an I M POSSIBLE! one.
It's only then can the exciting journey of possibilities begin, reinforcing their will to not just survive, but thrive with their challenges and believe in their abilities over their disabilities.
We believe all of us are able in some ways and not able in many. Key is to focus on our abilities and not on our disabilities .
We believe each and every human being, no matter what their challenges, are good at something and if they are made to feel adequately empowered, they too can thrive in their lives.
S. M. A.
SPINAL MUSCULAR ATROPHY (SMA) is an inherited neuromuscular, genetic disorder that causes muscle weakness and degeneration over time. Its the leading cause of infant mortality in the world.
It takes both the parents of the child/individual to be carriers of SMA to result in this condition.
Depending on the type of SMA , symptoms can include respiratory weakness, problems swallowing and chewing, lack of motor function, inability to walk, or mild muscle weakness.
SMA is also one of the 5% of rare diseases that has an approved line of treatment today, ensuring better life expectancy in the affected population.
A. R. T.
Are the three most important life navigating tools for people living with disabilities.
AWARENESS:
Awareness is an absolute must for rare disease families to help them navigate through their difficult journeys. Awareness also helps in early intervention and most importantly in prevention of RDs in future generations.
RIGHTS:
Right to Life,
Right to Dignity,
Right to Move,
Right to Good Health,
Right to Education,
Right to a Sustainable Life
are some of the basic human rights, for those living with disabilities.
TECHNOLOGY:
For people living with disabilities, technology can aid in their education, employment, movement, advanced healthcare and most importantly in spreading awareness to deepest corners of the country.
SMAARTR
SMAARTR is a one-of-a-kind online Home Décor, Lifestyle, and Stationery retail platform, thoughtfully curated for personal and corporate gifting with a deeper purpose.
✨ Our MOJO: The Art of Gifting to Create Impact ✨
Every SMAARTR product is customized using artwork lovingly and painstakingly created by artists living with rare diseases, along with collaborating artists from across India, people from diverse walks of life who choose to stand with us and support our cause.
At the heart of SMAARTR lies a powerful mission:
To create widespread awareness about rare diseases and the urgent need for prevention and support.
SMAARTR is the for-profit retail arm of our non-profit initiative:
I M POSSIBLE & SMAART ( IMPS )
INCLUSION PARTNERS
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I M POSSIBLE & SMAART
