** NON PROFIT INITIATIVE FOR RARE DISEASE AWARENESS & PREVENTION **
I M POSSIBLE & SMAART
EACH OF US CAN MAKE A DIFFERENCE TO ANOTHER LIFE.
BUT CHANGE HAS TO BEGIN WITHIN US FIRST!
about us
THE INITIAITVE
We are social impact enablers & catalysts who help foster partnerships between Corporates, compliant NGOs, Patient Advocacy Groups (PAGs), Healthcare & subject matter experts to support awareness & prevention of rare diseases.
IMPS is a non profit initiative, inspired by the journey of a young girl, Keya Hatkar, who was diagnosed with SMA at the age of 10 months and given only 2 years to live.
Today, Keya is 15 years old and in spite of living with 80% physical disability, Keya is the recipient of the prestigious Pradhan Mantri Rastriya Bal Puraskar 2024-25. She is a national & global award winning, young Author of 3 best sellers from, India. Keya is also one of the top 30 Global Disability Inclusion Advocate, TEDx Speaker, Artist, Coder, Podcaster & a YouTuber.
Keya believes "I M POSSIBLE!" and inspires many others to do so.
"I M POSSIBLE !"
When a child or an adult is diagnosed with a rare disease, their journey starts on an impossible and hopeless note.
Our mission is to first help the affected families transform this IMPOSSIBLE! mindset to an I M POSSIBLE! one.
It's only then can the exciting journey of possibilities begin, reinforcing their will to not just survive, but thrive with their challenges and believe in their abilities over their disabilities.
We believe all of us are able in some ways and not able in many. Key is to focus on our abilities and not on our disabilities .
We believe each and every human being, no matter what their challenges, are good at something and if they are made to feel adequately empowered, they too can thrive in their lives.
S. M. A.
SPINAL MUSCULAR ATROPHY (SMA) is an inherited neuromuscular, genetic disorder that causes muscle weakness and degeneration over time. Its the leading cause of infant mortality in the world.
It takes both the parents of the child/individual to be carriers of SMA to result in this condition.
Depending on the type of SMA , symptoms can include respiratory weakness, problems swallowing and chewing, lack of motor function, inability to walk, or mild muscle weakness.
SMA is also one of the 5% of rare diseases that has an approved line of treatment today, ensuring better life expectancy in the affected population.
A. R. T.
Are the three most important life navigating tools for people living with disabilities.
AWARENESS:
Awareness is an absolute must for rare disease families to help them navigate through their difficult journeys. Awareness also helps in early intervention and most importantly in prevention of RDs in future generations.
RIGHTS:
Right to Life,
Right to Dignity,
Right to Move,
Right to Good Health,
Right to Education,
Right to a Sustainable Life
are some of the basic human rights, for those living with disabilities.
TECHNOLOGY:
For people living with disabilities, technology can aid in their education, employment, movement, advanced healthcare and most importantly in spreading awareness to deepest corners of the country.
SMAARTR
To celebrate the art of giving, we launched a humble initiative in the year 2023 for personal and corporate gifting using the artworks created by our specially abled artists in the IMPS community, called SMAARTR (formerly called the Gift Shoppe).
We have consciously chosen the name SMAARTR as we believe that despite living with life threatening rare diseases like SMA , DMD to name a few, each of these children / adults are way SMAARTR than anyone can imagine.
These individuals are talented, bright, and have the power to excel in every field they choose. It's time to acknowledge their capabilities ever more than before and empower them to be financially independent.
SMAARTR also intends to use ART for INCLUSION. We invite artists from outside our rare disease community to come and participate to reinforce our mission, thus exemplifying inclusivity in the truest sense.
As SMAARTR continues to grow as a gifting platform every year, so does our aim to spread widespread awareness of this amazing pool of talent who deserve to be known and encouraged.
SMAARTR focuses on:
- BELIEVING IN "I M POSSIBLE".
- ART OF GIVING.
- EMPOWERING AN ARTIST.
- ART INCLUSION.
- SPREADING AWARENESS ON RARE DISEASES & IT'S PREVENTION.
- ENTREPRENEURSHIP.
With every gift purchased through SMAARTR, you will not only bring smiles to your loved ones, but also bring the artist, warrior behind the art, a few steps closer to affording their expensive treatments and livelihood. Your compassion has the power to make us SMAARTR.
STRONGER TOGETHER
your support matters
contact us
EMAIL : i.m.possibleandsmaart@gmail.com
